Being admitted: low counts

This week was the 2nd dose back at 100% Vincristine.  All went well, until Thursday when she stopped eating and at night she started coughing a bit and freaking out a bit like she used to do, enough to have to move her out of her room.  Her brother was out of school this week with strep throat and ear infection and baby sister started getting fever and goupy eyes so prolly has some sort of virus.  So we kept watching Taylor but she seemed fine fever-wise.  Then Friday night she was coughing so bad she couldn't sleep, nor could I.  It was horrible.  It was so bad she finally coughed up her NG tube and it had to come out.  But her fever was only 100.0

This morning I kept watching her.  She still had no high fever.  She still didn't want to eat.  Then, close to lunch she was getting tired, said her ear hurt, and was feeling hot; alas she was 101.8  I finished up somethings, had some lunch and checked again, same thing.  So we started getting things ready and calling the Dr.  And around 1:30 we were off to the ER to get checked out.

When we got there, we had a room right away, it was nice that they were not busy.  This is the first time I have had to run to the ER during the day, so that is something new.  Her fever was now 102.2.  They say her ears just have a little fluid in them, but nothing looks bad.  They did a swab for strep just in case- but it was negative, and of course they took her labs.

Her counts came back really low 460, anything under 500 means that we have to be admitted to the hospital for observation and "quarantine".  There go our plans for my sons bday weekend and mother's day weekend.  Oh well, such as life.  At least Nana is on the way here as we speak... we will need the constant extra help over the next couple days at least for sure.  Will update more as I can

quick update

Ok I know it has been over a month since I have posted.  So sorry about that.  Things have been busy and I guess I didn't have the gusto to keep writing.  After the last hospital admission, things have been different.  She turned right around and had more of the same pain the day after leaving, this time moving to her foot instead of hip.  Then it went to her knee.  After a few trips to ER for pain and fever, we finally made it back to clinic where they said it is most likely just neuropathy pain and they prescribed her some meds for that.  They pain continued over the next three weeks during her two week break from chemo.  It came and went and moved around.  She stopped getting fever though and after that one really bad week, we had a couple of good weeks.  Then it was time to start chemo back up.

They started back at the 75% level of Vincristine again.  She did well.  The next week she went up to the 100% since her voice was still doing great.  The next day her nerve pain issue stopped.  So after a few days I backed of the nerve meds a bit and then just stopped them all together.  Her pain has not come back.  That is awesome.  Her weight is up a pound, stomach pain is gone, voice is great, nerve pain gone, and no night terrors!!!  Things have been great, just one trip to ER last week for fever and then home.  Counts have been awesome!