Ok I know it has been over a month since I have posted. So sorry about that. Things have been busy and I guess I didn't have the gusto to keep writing. After the last hospital admission, things have been different. She turned right around and had more of the same pain the day after leaving, this time moving to her foot instead of hip. Then it went to her knee. After a few trips to ER for pain and fever, we finally made it back to clinic where they said it is most likely just neuropathy pain and they prescribed her some meds for that. They pain continued over the next three weeks during her two week break from chemo. It came and went and moved around. She stopped getting fever though and after that one really bad week, we had a couple of good weeks. Then it was time to start chemo back up.
They started back at the 75% level of Vincristine again. She did well. The next week she went up to the 100% since her voice was still doing great. The next day her nerve pain issue stopped. So after a few days I backed of the nerve meds a bit and then just stopped them all together. Her pain has not come back. That is awesome. Her weight is up a pound, stomach pain is gone, voice is great, nerve pain gone, and no night terrors!!! Things have been great, just one trip to ER last week for fever and then home. Counts have been awesome!
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