Thursday, 18 July 2013

Make A Wish

The Make A Wish team had a party to announce Taylor's wish on Tues June 18.  It was held at our local chick-fil-a and it was so fun.  We had some friends join us, everyone got a free meal and it also happened to be the cows bday party at the same time.  So the place was very festive.  MAW made her a Dora beach cake, she loved it so much.  They explained our trip to us and we were blown away at all that was included and the kids were very excited.






Then, the next day was 4th dose of chemo for this round.  Her counts were too low, 300, to get chemo but she did not have fever.  Then Fri we ended up having to go to clinic due to fever that morning and.  It too forever to get her counts because they had to hand count them and there was only one person on staff in the lab for that this day.  The nurse came and said she had to be admitted due to low counts.  We got a room and still didnt really have a full count on the WBC but she was having fever and the quick count was low.  Turns out the count was 330.  She did well in the hospital, and that night my hubby came up with some Sushi and we had a lil date night watching a movie in the room there.  Then he stayed and I went home w the other kids and my sister.  Taylors counts were getting really low, 170, and not going back up, so she had to stay there through Mon morning when she was back to 300 and no fever.  That was a loooong stay and we were so happy to finally get her home.   It is hard to be away from your spouse for a few days, especially during a time when it is stressful having a sick kid.  It was so hard to not be with her the whole time too but we were so lucky to once again have a family member visiting during a hospital admittance to help out.

Over the next week she got better, she had gotten back up to 1070 by Wed, so we were all cleared to go on our MAW trip that Fri!

The whole trip went great!  Taylor did not get sick at all, no fever, no feeling bad, or anything.  It was such a blessing to be able to go and have a week of fun with the kids and not have her get sick.  We of course went to Orlando.  We were picked up in a limo.  We stayed at Give Kids the World.  That place is really neat!  We recommend it for a kid's wish trip!  We did all the Disney parks, the beach, and Lego Land.  We got rained on a whole lot the first 2 days but the rest of the time was pretty good weather.  We got to meet Dora, Jake the pirate, Phineas and Ferb, Princesses, Mickey, Pluto, Marry Poppins... and we saw the marvel superheroes but we just missed doing a meet and greet with them.  The kids really enjoyed the trip.  It was crazy and stressful from time to time, but it was a great experience and memory for all.





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