Wed the 31st, she was doing great after her last ordeal the week before... feeling awesome, playing and everything. She had good counts when we got to clinic that day so they gave her Chemo for the day. She got her port meds when we got home and then had a nice day. That evening she started getting a bit warm, 100. She had a good night and tolerated her feed. The next day, she woke up with 100.3 An hour later she was 101.5 and then 45 min later she was 102.2, so I had to call the docs. They said to bring her to clinic. Dad took her and she was 103.3 when they got there, had good counts 3940 but they think she has a virus and she is being admitted.
They got her admitted and the ID docs came in to check her out. They did not seem to find any signs of anything else on her body to help them diagnose her. So we have to wait on the virus tests and blood culture to get any more info. That evening they took her for a chest xray just to make sure all was well there. She isn't really coughing much at all but they want to check anyway. Laying in the hospital, she was so cold, wrapped up in tons of blankets. She played a little bit while she was in the clinic but was really tired the rest of the day. I got to go visit her that night since my mom was still visiting us. Taylor had been asking for me again. When I got there she was watching tv all curled up in a ball on the bed. She was really tired. She had eaten some dinner but not too much. She didn't talk to me much at all. After a bit, the night nurse came in and intro herself and got the nasal swab to check for viruses. Poor Taylor hates getting that thing done. So now we keep waiting.
Friday was really crazy stressful for lots of reasons, all kinds of stresses in our family. They decided to try a day feed to see if that would help her get the amount of nutrition she needs. She threw up while on it though. We don't think she is doing well tolerating such high speed feedings for some reason. So it is up in the air what will happen with all that. That evening the hubby had to come home to de-stress and then I went up to take my turn. He says he just can't take the stress anymore and needs to stay away from the hospital. I had a friend come up a little while later because I just needed a friend and some girl time and to talk and such. It was nice. Taylor spiked to 104 this day and at 10pm was 102 again. She still shows no other signs of anything and counts are still really good. Her virus panel came back all negative so that is good! They were able to take her off precautions so people no longer have to come into her room in gowns and such. They still want to try a couple more things to see why the fever. They are also going to continue the dapto (antibiotic) just as precaution and she started a new antibiotic when she was admitted. They want to make sure to cover all bases. She still has diarrhea.
Saturday morning she woke up and had no fever. She whined when waking and wanted to go home, but once she was fully up she was doing fine. She watched tv and talked and played games most of the morning. At home, things seemed to be going well. My mom had to leave a little before 10am because she had to get home for my nephews baptism later that day. We were all supposed to be going up there for the weekend if Taylor was doing well. We will miss seeing this awesome event. The docs did their rounds about 10:30 am and they still think it is a virus, just not one they test for. It is their best guess as of right now. They are still running some more tests, like the culture and a fungal test. They want to see the fever stay gone for 24-36 hrs (it has been 12 hours since her last one so far) and for her counts to stay in the healthy range (which they are 1510 at this point). Her platelets have dropped to 75, which is not cool. If they get down to 50 she will have to have a transfusion.
If she is still here come Mon, we will need some help with the kids and meals and such. So, if anyone would like to offer a time to do either of those, please let us know. I just found a cool website where we can post all our needs and you can pick and sign up for when and how you want to help. I will post the link to family and friends if we end up staying in the hospital and need it. Thanks. I feel your prayers and love!
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