I know it has been forever and I am sorry for that. Things got much better and I was tired and busy with life and other stresses. After her last visit the Docs decided to lower her chemo doses to 75% because they say she shouldn't be getting sick all the time like this on this treatment. Once they did that, she has been doing great. She got a fever once in like Oct I think but it was nothing but a quick ER visit for antibiotic.
She has had good visits and only had to miss getting chemo a time or two due to low counts. Her weight has gone up to over 31 lbs, which is amazing! She has been having fun and playing and being herself. Her hair has been growing and is pretty full now.
Her tumor has been shrinking over the year, it is about 2/3 the size as it was when we started!! So that is great news! Hopefully that keeps up and it goes away and stays away.
This past week she has not been eating all that well. Yesterday she weighed in at only 30 lbs 11 oz, s down a bit and her counts were too low for all her chemo, only 160, very neutropenic. So they just gave her the Vincristine. Her platelets have been low since last week as well but were ok enough, 55, not to do anything. Then, last night she got a fever around 5pm, 102.2 so we had to automatically go up to the ER and be admitted. We finally got a room in the hospital around 10pm. They gave her antibiotic and did viral swab in the ER and a chest xray as well since they thought they heard crackling in her chest, but it came back fine. Her fever went down all by itself while in the ER. When they took her blood, her counts were even lower, 40. Over night they gave her a platelet transfusion since those had now dropped below an acceptable level, 33. They also gave her the injection to get her counts back up since they are almost as low as they can get. Hopefully they go up fast and fever goes away and stays away and we can get out of here fast. She had been asking for some food since we go to the ER but she wasn't allowed to eat until she got to her room because she is on precautions. Once we got up here she asked for cereal and had some fruit loops. I was happy to see her eating.
Her fever came back over night, 100.9 so they gave her tylenol. She woke up early around 5:30 this morning not able to sleep anymore. So I let her start watching tv. Today is her 5th bday!
Happy birthday Taylor!
She is doing well. We have to wait for counts to go up, fever to stay gone, and make sure culture is negative. So prolly a couple days till release.
No comments:
Post a Comment