So, we got to the ER and Taylor was whinning in the car and she didn't walk to walk and it hurt her leg when I carried her but I was not about to drag that huge stroller around all over the hospital. So we made it inside and again were told to wait in the conference room, but not even a minute later the nurse came and got us. Vitals were taken and she was up to 103.4. Then with Tylenol it went down to 99.8. They wanted urine, but she would not go. She did not want to move. So many different nurses and doctors came in and out wanting to check her leg/hip pain and find out what was going on. We waited around forever!!! Taylor would never pee, and they needed that test done. While we waited, the doctors were still trying to figure out what was going on. I asked about t just being a pulled muscle and she said that kids don't really get those, it is not common. They think it has something to do with a virus or bacteria. They had her get an ultrasound to help diagnosis. It came back good. They took her blood and it came back good. Later, her fever came back. They were about to give us the antibiotic and send us home like normal, but then the head Doc was too concerned about her odd pain, so she wanted more xrays. So she went for more xrays. They came back good. The doctors had lots of talks about Taylor's situation all night long, lots of different kinds of doctors. They decided she needed an MRI so we were admitted to the hospital at 11pm and she was cutoff all fluids and food.
Taylor was still very tired and didn't want people touching her leg, but of course more ppl came in to do so. An orthopedic doc came and examined her and talked about what could be the problem and why we were getting an MRI. They said it could be sepsis or bone infection. If it was the latter then it would mean surgery to dig the infection out of the bone since antibiotics do not work on those. I did not like the sound of that. We got all comfy in the room and Taylor got antibiotics and pain med and her normal meds. In the morning, it took a while but we finally were told the MRI would be at 12:30. Taylor was really thirsty and hungry and crying because she couldn't have anything. A whole doctor team came in to go over the run down of Taylor. It was neat, like being in an episode of Scrubs; all the docs standing around with their clipboards listening. I was impressed with all the info they went through and nailed. They helped fill me in on their thoughts and plan while they were there. Then more waiting. It was a long wait, but thankfully they got us down like an hour early! That was awesome. My husband met me for lunch while we waited for MRI. She was out within 2 hrs and she wanted her popsicle. We got back to the room and waited on results. No news, was good news because if they saw something bad they would have called while she was still under so that they could do what they needed to do with my permission. It took forever to finally hear anything though.
It took a while, but a couple hours after the MRI Taylor was fully out of it. She was actually feeling better than she was. So that was nice. She ate some snack and watched tv. Her leg seemed a bit better too. We finally got word that the MRI was good. They didn't see what they were looking for. But they did see some inflammation in her muscle. They said that it could be either myolitis (?) which is from like a virus or bacteria stuck in the muscle, or that it is a strained muscle. So it was nothing serious. It would eventually go away. The plan was to give her pain med scheduled regularly to help her.
By the end of the day, she was feeling much better. She was walking around, slowly with limp (a twist in her hip), she was sitting up and talking. She seemed good. We were hoping to go home but the docs said they wanted to watch her pain and see if the fever returned or not. So we had to stay another night. By that night, she was doing so well that the nurse and I decided she didn't need pain med and she went without it. We had a great night's sleep and in the morning Taylor was feeling perfect. Ortho came in at 6 to check her and he said she was perfect and that we should not be here much longer!
At 9am we still hadn't seen a doctor or nurse (besides her vitals being checked).. I mean what is going on? I went to grab some breakfast at like 9:30. Around 11 we finally saw a team of docs and they checked out Taylor and they were going to send us home with antibiotic for her to take but after seeing her they say there isn't really any sign of the myolitis. So she went to have paperwork done up for us to leave. At 11:45 she comes back and says there is a change of plans. She ran into the infectious disease doc and he wants to see Taylor first, because he thinks she should still take the antibiotic. So paperwork put on hold while we waited yet again. They said he should be on the way. While we waited Taylor took a little nap. A while after she woke up, she diarrheaed all over the place. It was a huge blowout mess that called for a change of sheets, clothes, and a sponge bath. Finally, at 1:45 a doc from ID came and checked Taylor out. Then she left to consult with the ID team. I finally ordered Taylor some lunch and I went down to get myself something to eat. I was starving!!! Then, at 2:45 the whole ID team shows up. Taylor was fully herself at this point, wide awake and all over the place. They saw a happy, healthy, silly, energetic 4 yr old. Oh my was she feeling good. They say they want Taylor to take the antibiotic over the next 2 wks since it could be a bacteria causing the problems and they want to be safe. They think the antibiotics are what helped her get better while she was here. So they left and put the scrip in for the med and to get her papers ready so we could be released. We waited around a while for the order so that the nurse could take out her port access. Finally at 4:00 the nurse came to de-access her and we were out of there... Hit the pharmacy at the hospital on the way out and were driving away by 4:20... of course it was traffic hour, and we had to stop at walgreens as well, but we were home by 5:15, just in time to unpack, rest a bit, feed the baby, and have the meal our friends brought us. Now it is time to get her ready for bed, hopefully nothing else eventful happens.
Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts
Friday, 5 April 2013
Admission to Hospital
Labels:
antibiotic,
bacteria,
bone infection,
chemo,
ER,
fever,
hip pain,
hospital,
leg pain,
MRI,
myolitis,
neurofibromitosis,
NF1,
optic glioma,
sepsis,
surgery,
tired,
virus,
xray
Thursday, 31 January 2013
Prep days
I needed to be up at like 5:30 or so in order to get everything and everyone ready for the day. However, the baby got up at 5 for some reason and I was awake enough, so we just got up and got started. I was able to get everything done without getting my husband up. Which I am sure he loved since he was up really late finishing a project. Then we (Taylor, baby, and I) were off to the hospital for her port surgery after dropping off the middle boy at school. I realized I left the house without eating, so we stopped quickly at Starbucks for a much needed caramel white mocha and a blueberry muffin. Poor Taylor was not allowed to eat or drink. She was like, I'm hungry mommy... I like coffee mommy. I'm like, awe I know baby. I pulled away and realized, once on the road, that they gave me a mocha instead of a white mocha. Ugh, I hate their mochas!!! But, I ended up drinking it anyway cuz I needed to. Anyway, back on the road and the nurse calls saying they would like to start us early and they will be ready when we get there. I'm like, well I can't drive any faster than traffic will let me, lol.
Traffic wasn't that bad and we arrived about 5 minutes early, for an 8am appt. Not much longer, we were taken back to get started. Her surgery was supposed to be at 10. They were done with the pre-surgery stuff and ready to take her back at 9. About 20 min later or so, the surgeon came out and said they were done and it went perfect. But it would be another 20 min or so until they finished up. A little over an hour later, the nurse came and got us to take us to her. She was crying and not feeling good. Her arm hurt really bad. We watched tv while they went to get her some pain meds and an icee. Then she kept saying her nose hurt and then her head was hurting and she would whine and cry. We were waiting there forever it seemed and the nurse said they were waiting for the doc to check her xray. She had her icee and a bag of doritos. They finally got an ok and we left right before noon. Her arm was in pain the rest of the day, but not so bad she complained a lot or needed any more meds. She would just not use that arm to do anything.
During this day, a friend of mine came and took my two oldest to the discovery center for the morning and then came back to cook us dinner and clean some of our house. That was such a blessing! We are very thankful.
Tuesday, I needed help with the morning so my hubby got up and got the kids ready while I fed the baby. He made me some coffee too :). Then, we were off to the hospital again for her kidney test and hearing test. They brought us right back and all the staff thought she was so cute. They needed to access her port for the test today. The bandages are supposed to stay on for 2 days, and yet here they were taking them off and sticking a tube into the port already. Taylor did NOT like it, it hurt really bad! She was crying and screaming. Her arm was still freshly sore from the previous day's surgery. They numbed up the area with some special cream, but she didn't even like them touching her for that. And when they finally inserted the tube, she still felt it. It was not fun. Then they had to get her arm and inert the dye test; it took them three different tries to get a good vein. She REALLY did not like that!!! Poor thing. They were finally done poking at her and we went and sat in a big chair with a personal tv and lots of games. They would come by every 30 min or hour to do a test with an injection into her tube. That didn't hurt at all. We just sat around waiting and playing games and eating lunch. While we were sitting there, we met another girl who was there for the same thing as Taylor. She was a teenager and they were both starting this process at the same time. So every time we come in, we will see them and being going through the exact thing. So that is neat. They were a nice family from Alabama who loves Jesus. Another lady was there with her dog. They come in as "pet therapy" for the patients. Taylor liked petting the dog, it was really soft. Then we were done right before 1pm. Just in time for the 1:00 hearing test appt. So we went upstairs and got that done. She did perfect and then we were able to go home. Her arm was still hurting, but she was fine. They left the tube in so that they wouldn't have to put it back in the next day.
During this day, our babysitter cane and hung out with the two oldest to watch movies and play games. They just love her and she is awesome. We are thankful for her. Another family brought us a meal for dinner. Again, so thankful! Another friend came by and brought Taylor a gift; she had made her a shirt with a heart and the letter T on it, and also a tutu and hair bow. They were so cute and she wanted to put them on right away when she opened them that night. Also, a lady from our homeschool co-op delivered some birthday cards that the kids in the service project class had made for Taylor. That was so sweet! She loved opening all of them. She is really blessed to be receiving so much love!
Traffic wasn't that bad and we arrived about 5 minutes early, for an 8am appt. Not much longer, we were taken back to get started. Her surgery was supposed to be at 10. They were done with the pre-surgery stuff and ready to take her back at 9. About 20 min later or so, the surgeon came out and said they were done and it went perfect. But it would be another 20 min or so until they finished up. A little over an hour later, the nurse came and got us to take us to her. She was crying and not feeling good. Her arm hurt really bad. We watched tv while they went to get her some pain meds and an icee. Then she kept saying her nose hurt and then her head was hurting and she would whine and cry. We were waiting there forever it seemed and the nurse said they were waiting for the doc to check her xray. She had her icee and a bag of doritos. They finally got an ok and we left right before noon. Her arm was in pain the rest of the day, but not so bad she complained a lot or needed any more meds. She would just not use that arm to do anything.
During this day, a friend of mine came and took my two oldest to the discovery center for the morning and then came back to cook us dinner and clean some of our house. That was such a blessing! We are very thankful.
Tuesday, I needed help with the morning so my hubby got up and got the kids ready while I fed the baby. He made me some coffee too :). Then, we were off to the hospital again for her kidney test and hearing test. They brought us right back and all the staff thought she was so cute. They needed to access her port for the test today. The bandages are supposed to stay on for 2 days, and yet here they were taking them off and sticking a tube into the port already. Taylor did NOT like it, it hurt really bad! She was crying and screaming. Her arm was still freshly sore from the previous day's surgery. They numbed up the area with some special cream, but she didn't even like them touching her for that. And when they finally inserted the tube, she still felt it. It was not fun. Then they had to get her arm and inert the dye test; it took them three different tries to get a good vein. She REALLY did not like that!!! Poor thing. They were finally done poking at her and we went and sat in a big chair with a personal tv and lots of games. They would come by every 30 min or hour to do a test with an injection into her tube. That didn't hurt at all. We just sat around waiting and playing games and eating lunch. While we were sitting there, we met another girl who was there for the same thing as Taylor. She was a teenager and they were both starting this process at the same time. So every time we come in, we will see them and being going through the exact thing. So that is neat. They were a nice family from Alabama who loves Jesus. Another lady was there with her dog. They come in as "pet therapy" for the patients. Taylor liked petting the dog, it was really soft. Then we were done right before 1pm. Just in time for the 1:00 hearing test appt. So we went upstairs and got that done. She did perfect and then we were able to go home. Her arm was still hurting, but she was fine. They left the tube in so that they wouldn't have to put it back in the next day.
During this day, our babysitter cane and hung out with the two oldest to watch movies and play games. They just love her and she is awesome. We are thankful for her. Another family brought us a meal for dinner. Again, so thankful! Another friend came by and brought Taylor a gift; she had made her a shirt with a heart and the letter T on it, and also a tutu and hair bow. They were so cute and she wanted to put them on right away when she opened them that night. Also, a lady from our homeschool co-op delivered some birthday cards that the kids in the service project class had made for Taylor. That was so sweet! She loved opening all of them. She is really blessed to be receiving so much love!
Labels:
brain tumor,
chemo,
chemotherapy,
MRI,
neurofibromitosis,
NF,
NF1,
optic glioma,
Port,
surgery
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