Thursday, 31 January 2013

Prep days

I needed to be up at like 5:30 or so in order to get everything and everyone ready for the day.  However, the baby got up at 5 for some reason and I was awake enough, so we just got up and got started.  I was able to get everything done without getting my husband up.  Which I am sure he loved since he was up really late finishing a project.  Then we (Taylor, baby, and I) were off to the hospital for her port surgery after dropping off the middle boy at school.  I realized I left the house without eating, so we stopped quickly at Starbucks for a much needed caramel white mocha and a blueberry muffin.  Poor Taylor was not allowed to eat or drink.  She was like, I'm hungry mommy... I like coffee mommy.  I'm like, awe I know baby.  I pulled away and realized, once on the road, that they gave me a mocha instead of a white mocha.  Ugh, I hate their mochas!!!  But, I ended up drinking it anyway cuz I needed to.  Anyway, back on the road and the nurse calls saying they would like to start us early and they will be ready when we get there.  I'm like, well I can't drive any faster than traffic will let me, lol.

Traffic wasn't that bad and we arrived about 5 minutes early, for an 8am appt.  Not much longer, we were taken back to get started.  Her surgery was supposed to be at 10.  They were done with the pre-surgery stuff and ready to take her back at 9.  About 20 min later or so, the surgeon came out and said they were done and it went perfect.  But it would be another 20 min or so until they finished up.  A little over an hour later, the nurse came and got us to take us to her.  She was crying and not feeling good.  Her arm hurt really bad.  We watched tv while they went to get her some pain meds and an icee.   Then she kept saying her nose hurt and then her head was hurting and she would whine and cry.  We were waiting there forever it seemed and the nurse said they were waiting for the doc to check her xray.    She had her icee and a bag of doritos.  They finally got an ok and we left right before noon.  Her arm was in pain the rest of the day, but not so bad she complained a lot or needed any more meds.  She would just not use that arm to do anything.

During this day, a friend of mine came and took my two oldest to the discovery center for the morning and then came back to cook us dinner and clean some of our house.  That was such a blessing!  We are very thankful.




Tuesday, I needed help with the morning so my hubby got up and got the kids ready while I fed the baby.  He made me some coffee too :).  Then, we were off to the hospital again for her kidney test and hearing test.  They brought us right back and all the staff thought she was so cute.  They needed to access her port for the test today.  The bandages are supposed to stay on for 2 days, and yet here they were taking them off and sticking a tube into the port already.  Taylor did NOT like it, it hurt really bad!  She was crying and screaming.  Her arm was still freshly sore from the previous day's surgery.  They numbed up the area with some special cream, but she didn't even like them touching her for that.  And when they finally inserted the tube, she still felt it.  It was not fun.  Then they had to get her arm and inert the dye test; it took them three different tries to get a good vein.  She REALLY did not like that!!!  Poor thing.  They were finally done poking at her and we went and sat in a big chair with a personal tv and lots of games.  They would come by every 30 min or hour to do a test with an injection into her tube.  That didn't hurt at all.  We just sat around waiting and playing games and eating lunch.  While we were sitting there, we met another girl who was there for the same thing as Taylor.  She was a teenager and they were both starting this process at the same time.  So every time we come in, we will see them and being going through the exact thing.  So that is neat.  They were a nice family from Alabama who loves Jesus.  Another lady was there with her dog.  They come in as "pet therapy" for the patients.  Taylor liked petting the dog, it was really soft.  Then we were done right before 1pm.  Just in time for the 1:00 hearing test appt.  So we went upstairs and got that done.  She did perfect and then we were able to go home.  Her arm was still hurting, but she was fine.  They left the tube in so that they wouldn't have to put it back in the next day.

During this day, our babysitter cane and hung out with the two oldest to watch movies and play games.   They just love her and she is awesome.  We are thankful for her.  Another family brought us a meal for dinner.  Again, so thankful!  Another friend came by and brought Taylor a gift; she had made her a shirt with a heart and the letter T on it, and also a tutu and hair bow.  They were so cute and she wanted to put them on right away when she opened them that night.  Also, a lady from our homeschool co-op delivered some birthday cards that the kids in the service project class had made for Taylor.  That was so sweet!  She loved opening all of them.  She is really blessed to be receiving so much love!



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