Taylor was wearing her new tutu and when we walked in, immediately all the nurses were like, awe how cute. They think she is just the most adorable thing. They all said happy birthday to her. As we were waiting for the doctor, the staff comes in with a big bag full of gifts for Taylor. That was the sweetest thing! I did not expect that at all! Taylor was so excited! Again, such a blessing. We ended up waiting around for quite a while; it happens that the Doctor got stuck in traffic from a tree blocking a road because of the storm that came through. Finally, we were moved to the treatment room. We had to wait a little bit more because they did not pre-make the chemo like they normally do. This is because they wanted to double check her weight. I guess someone thought it was a mistake because it says 28lbs and she is 4 yrs old, lol. We had an 8:00 appt and finally got the chemo started at 10:40 or so. While we were there, the other girl we met yesterday came in for her treatment and brought Taylor a birthday gift. Again, we were pleasantly surprised and thankful. She has so much blessing following her around during this time. Also, while we were there the big kids were taken back to talk with one of the staff all about what is going on with Taylor. They had a puppet that had a port and everything and they used him to talk all about it. They learned about the port, the chemo, the tumor and how Taylor might get sick and everything. Near the end of the treatment, a music therapist came in. She had a few instruments with her and the kids got to play with them. Taylor wanted the guitar and nothing else. The guitar was supposed to be for the therapist to play and sing but she let Taylor have it to play with. She loved it!!! She wants to get one with her birthday money. So the kids had fun with the music for a bit and then it was time to go. During the treatment, Taylor was fine. It didn't hurt her and she seemed unfazed by it. She then had to get a flu shot; since we don't do them, she hadn't had one. But being that she is on chemo it seemed ok to give into that and it should help her wjen her immune system gets compromised. She hated that shot! It hurt! Then we were all done for the day. All was well when we left the hospital.
She wanted some McDonalds for lunch on the way home; I hate going there but it was her bday after all. She fell asleep in the car and woke up right as we were picking up the food. We got home and she didn't really eat much, but that is not abnormal for her. She wanted to play with her new stuff. I was extremely exhausted still. I wanted a nap really really badly; I was really grouchy too. But alas, straight from lunch time, to feeding baby, to having to leave to pick up the boy at school... When I got home I tried to take a nap but it didn't really work. I did rest for a bit though. Then it was off to drop of the scrips to get Taylor's meds and buy her some Eggo waffles she wanted for her bday. When I got home, another family was over dropping off our dinner. We love you guys! Thanks! Around this time, Taylor slowly started saying her tummy hurt. We were not sure if it was from hunger or sick feeling from chemo. She ate her dinner and still complained about her tummy from time to time. So I figured it was the chemo kicking in.
Then it was time to go pick up her meds. She wanted to come with me, but she was also all of a sudden complaining a lot about her tummy. So I was saying she should stay home. But she really wanted to come, so I brought her. Right after we left the house she started screaming about her head hurting. She screamed and cried really hard. Just out of nowhere. It didn't sound good at all. Also, saying her tummy hurt. I finally got her to calm down right as we got to the pharmacy drive thru. Then she threw up all over herself. Poor thing. As I picked up the meds, we were told that one of them (the nausea med) needs prior authorization from the Doc before the insurance will cover it. So we can't have it until they get that. REALLY???? Because she is throwing up right now and it would be nice to have! Ugh, how moronic. Anyways, finally got her home and cleaned her all up. She was fully pale and looked horrible. She wanted a bath and when getting one she was shaking really bad. Finally got her in her warm pjs and she wanted some of her cupcake that was given to her. I knew she was still feeling sick but let her have a bite because it was her bday and she wanted to. She took a bite of that along with some soursop juice and she threw up again. I took her temp and she was only like 97, so we bundled her up in her bed and she pretty much feel asleep while I tucked her in. She was so cute even in her patheticness.
She slept well and woke up a little early and wanted to sleep in our room, so she brought her new pillow pet and blanket in on the floor. When we got up, she threw up a tiny bit more but felt better and wanted to eat. She had breakfast just fine and has been acting her normal self. She finished up a box of soursop juice (a certain fruit that is supposed to help with getting rid of tumors) and I put some frankincense on her feet, neck, and back (an essential oil that is supposed to help with tumor fighting as well). Hopefully these things will make a big difference! Occasionally she says her tummy hurts, but she is doing okay. Her arm still hurts but she is using it now. She is actually climbing on my back as I write this, lol. This morning I got to sleep in while hubs got the boy off to school. A friend of mine also came and picked up my oldest boy to take him to his science class. She came by with homemade banana nut muffins for the family! So thoughtful of her! I feel well rested now and no longer like a zombie! Also, finally getting around to doing some laundry around here. Much needed! Thanks for your continued prayers for all of us during this time!
I am prayer for you and your beautiful family! May God give you strength and comfort at this trying time.
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