Wednesday, 27 March 2013

Chemo #9, feelin good and lots of gifts!

Well, this past week you would have never guessed Taylor was on chemo (except for the fact she is bald and has a feeding tube).  She has been doing awesome!  She has her voice back, she is playing a lot, she is active (almost back to her full crazy little self), she has been eating okay, and she has not complained much about her tummy hurting at all!!!  It has been so nice!

Yesterday we went back to ENT (ear, nose and throat) and he didn't have to scope her.  he saw her and automatically could tell how well she was doing.  She was playing in his office and talking a lot.  He checked her out a bit and called the Oncologist.  They decided not to scope because he was going to give 50% dose again this week.  They will wait to scope next week before going to 75%.  He also said he will let me see him Wed morning instead of making two trips from now on!  How nice of him.  He isn;t in clinic that day but is in the hospital.  He said he will run up to see Taylor in between his surgeries.  So nice!

Today went well.  Her poke didn't hurt, her weight was up a pound, and her count is 10050!!!  LOL  She went from almost being too low last wk to being extremely high this week.  I asked him about it and he says she is prolly fighting a virus or something.  I said she is fine, no signs of anything.  So all is good so far.  I asked the Doc if we needed to add a week onto her schedule since we missed a dose.  he said we would not add one, we just skipped.  So we are still on the same schedule to be done in the 10 weeks time.  So this was week 9.  She will get one more and then have 2 weeks off.  She painted, played games, and watched tv while getting infused.  I spoke with our friends again today and they are doing well too.  The teenager had her older sister with her this time, so it was nice to meet her.  I am glad we will stay on the same schedule with them.

Some ladies at church stayed after on Sunday and had a headband making party for Taylor and her sisters.  Then one of them came over to deliver them.  A ton of hairbands and 3 tutu dresses were a big surprise to the girls.  They loved it.  Also, today at the hospital an organization was there to give gifts to the kids at the clinic.  It is called NEGU.org and they gave out Jars of Joy.  This was started by a 12 yr old cancer patient while she was going through her treatment.  The Nashville Predators hockey team mascot Nash was with them so all the kids got to meet him and take their pic with him.  I forgot to mention last week that our friends brought Taylor a Caillou doll (we had given their little boy this a few years ago and he wanted to bless Taylor with it since she wanted to have one since Caillou was a bald 4 yr old too).  He loved this doll, slept with it all the time, but he wanted her to have it.  Such a sweet heart of a friend.  What a blessing all these gifts are to our family during this time.  Thank you everyone who has been blessing us and praying for us.




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