Taylor had a really good week after missing the chemo. Within a few days her voice was starting to com back some and got a bit better each day. It is now almost all the way back to normal! She was also full of energy and back to her normal crazy self. She was eating almost as well as she use to as well.
She did end up having the UTI and has been on meds for that and it is better, it was from E Coli somehow. Anyway, she had started complaining of stomach pain really badly in the mornings and so we thought maybe the feedings were bothering her. So we cut back on the amount we were giving and it got better. In talking with the Dr yesterday about it though, we realize that may have bene coincidence with the UTI, maybe the pain was from it and as she got meds at the same time as we backed off food, it got better. So we are to go back to 2 cans of pediasure over a 12 hour night period.
Mon Taylor and her big sister were playing and her feeding tube got ripped out of her nose. So she had to go without feedings for 2 nights. We got it put back in yesterday, that is so not fun. Poor Taylor. Hopefully it stays in this time and nothing makes it come out.
Tues we were back at ENT to get her vocal chords checked out. They looked back to normal and the Dr could definitely hear her talking this time. So we were clear for going back to the Vincristine drug on Wed.
Her redo of Chemo dose 7 went well. They did a 50% dose of the Vincristine to watch for the next week to see if it will mess with her voice again or not. If it goes well, then next week it will go up to 75%, then 100%. If it does mess with her voice, then we will stop Vincristine and try a different regimin. She is down in weight just a bit and her counts are low this time, at 580. I thought that was strange. So anyway, we have to make sure she doesn't get around sick people for now. She feels fine though and is having fun playing. Even today, after having chemo she is playing and eating and being herself! It is awesome! However, last night she started the fussing again a little bit. She woke me up crying at one point and when i went in there, she said she threw up. I looked around but it was only a little spit up. We went potty and cleaned up her hand and she went back to sleep. I did leave the bucket next to her bed just in case though.... which I am soooo glad I did because a little while later I heard her get up and throw up. She threw up a lot, all in the bucket. So I stopped the feeding. i don't know if she is nautious from the chemo or if the feedings are bugging her that bad. So we will just have to wait and see. I am glad to see she is fine today! She has been eating well and playing all day!
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