Thursday, the day after Chemo started, went really well... She woke up early and came in our room on the floor. When we finally "got up" she threw up a little bit but then felt fine. She ate breakfast and played and was doing awesome. That night we realized she hadn't pooped yet and so we needed to go ahead and start with the stool softener and Miralax they prescribed for constipation that can come with chemo. We didn't start these meds right away because Wed night she had very loose stools almost like diarrhea Weird how one day it can be that way and then the next day all stopped up. I tried to give her the liquid Colace; she had a sip and she hated it and wouldn't touch the stuff. So, hmm... what to do. I let it fly tonight and just gave her the Miralax in her drink. Anyway, the rest of Thursday was great besides that.
Friday she woke up and the day started great! She ate breakfast and drank. She played and had fun. Then around lunch time she started slowing down and she wouldn't eat and would complain off and on about her tummy. She was drinking her drink, but slowly. I still hadn't figured out what to do about the stool softener. By mid afternoon she started screaming about her mouth hurting and she would not eat or drink anything. It was like it was burning in her mouth. Nobody warned us about potential mouth pains or what to do about them. And she was not very energetic, which is odd for her. Around 4pm, I felt her and she seemed warm, so I got her temp. She had a little bit of a fever, 99.1. So I monitored it every 20-30 min. Next it was 99.9.... and then 100.3. That seemed to be rising quickly. The doctors had said that if she gets 100.4 or higher, then we have to take her up to the hospital. I was like, ugh! Not what wanted to do on a Friday night, especially after this busy crazy week. So I FB a prayer request about the fever and mouth and people were all over it. Then, I quickly took a shower and got ready in case we had to run up to Vandy. Our friends brought us our dinner and Taylor still had not pooped, she was dealing with fever, and she still won't drink or eat anything. Ugh!!! I got some answers from friends about a magic mouthwash to make with Benadryl and Mylanta. So, my husband went to the store and got the stuff to make it and we tried it. It seemed to help a little bit. She was able to drink some. But it was bed time and would have to wait to find out more the next day. When she went to bed the fever was down to 99.7!!! So happy!
Saturday, she woke up with no fever! PTL! What a blessing. Her mouth was still hurting though, so we tried the mouth solution again. It worked and she was able to drink some but still wouldn't really eat. She still has yet to poop. Later, I decided to give her a stool softener pill I had since she won't take the medicine she was given. I taught her how to swallow a pill and she did awesome. She says, I like the pill. The rest of the day she played well and had a good time. She would complain off and on about her tummy hurting or her mouth hurting. I got her to eat a little lunch by promising to take her to spend some of her bday and xmas money. She ate a small piece of pizza and all her chocolate milk (carnation drink). She also ate some of her dinner, some baked zitti a friend brought over for us. She was still complaining about her mouth and her tummy though. I gave her more mouth stuff another pill and she was drinking her drink with Miralax okay as well. Though, she still hadn't pooped. We took the kids shopping and they had fun. It was nice to get out and do that. She went to bed and soon after, she woke up fussing. We still are not exactly sure why. But our guess is from her tummy hurting. It woke the baby so I had to put her to sleep in our room. Taylor kept waking up whining and fussing but was like half asleep and said she didn't know why she was crying and didn't need anything. I finally turned off the monitor in the girls' room and got some decent sleep.
This morning, she woke up a little early and said her tummy hurt. I said she needed to go potty and she needed to eat at breakfast time. She tried to potty, but still nothing. But she kept trying to go every once in a while. I gave her some more mouth stuff. Yet again, she would not eat breakfast, but did have some of her drink. I decided we needed to stay home from church because we needed to deal with her constipation. While we were watching church online, she finally was able to go potty! Woohoo! She was hungry for snack but her mouth was still hurting from the food. So, since her carnation drink was okay for her, I decided that a smoothie might be a good idea to give her. It would be some good healthy food and would be cold and might not hurt her mouth. So for lunch I made her a strawberry peach smoothie with soursop juice, yogurt, honey, and vanilla almond milk. I had a taste, it was awesome! She really liked it and it didn't hurt her mouth! Woohoo! She had a good amount of it. So other than her tummy and mouth still hurting here and there, she is doing well today.
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