Chemo Day 3

Today was harder than last time.  Taylor had to sleep in our bed last night because she woke up freaking out again.  The poor thing was just too loud to stay in her room.  We eventually had to move her to the floor again because of her wigglyness and fussing.  She went back to her room at some point in the night.  She woke up early with her brother and I.  And since she said she would eat, I let her get up and she ate some muffins!  She mentioned later how she didn't want to go to the Dr and she was sad about it.  Then when we left, she whined in the car all the way there almost.  I did remember the numbing cream this time!  So that is good.  But man it was a fight to get that on her.  She is so afraid it will hurt her.

 I got to the hospital and realized I forgot the nausea med.  Then, we learned when we got taken back that the nurse gives her some right before the Chemo.  So we are good.  I just need to make sure to give her next dose to her before she goes to bed.  We went in the room to get her tube in and immediately she started crying and I had to hold both her hands and hold her down in the chair.  She was screaming bloody murder and wiggling to get out.  The nurse finally got the port in and it was no big deal.  Taylor calmed right down; maybe she realized that the cream I gave her was good and it helped and she will be better next time???

She has lost like around a pound since starting chemo; this is not good for her.  A nutritionist came and spoke with us.  They gave us samples of pediasure 1.5 and told us some tips and gave us a diet sheet for if she were to get sick or have low #'s.  Her numbers are good again this week, so we have not had to deal with that yet!  We talked to the Dr about her sleep problems and whether it is nightmare related or pain related or this other condition with her feet.  He says some of the meds are known for nightmares but hers are not; they can cause it but are not known for doing so.  Well, um I think that is what is going on here Doc.  We talked about the pain med and he said if we can't find someone til fill it, we can get it at the hospital.  We will get on that and see if that helps her sleeping.  Taylor really needs to get some better sleep and so do I.  She is too young to really tell me what is going on and it makes it so frustrating that I can't help her properly.

The teenage girl we met the first week again came with a gift for Taylor.  This time it was from her friends ont he cheerleading squad.  They heard about Taylor and wanted to send her notes, a blanket, and some chocolates.  That was so sweet!  We talked with that family for a bit, which was nice.  I got to ask her about if she had tummy pain, nightmares, sickness, etc.  It was cool to hear from someone else going through the exact same thing at the same time who could vocalize what it is like.  That was so helpful.  We are blessed to have them around.

It was really busy in there again.  We had to wait a little for a seat to be cleaned up for us.  Then the getting of the chemo went fine.   Taylor was a little tired but she played games and had some cheetos for a snack.  When it was time to get the tube taken back off, she did not cry.  She let the nurse do it and she was brave!!!  So happy about that!

When we got home this afternoon, a lady from the homeschool co-op came by and dropped off some gifts for all the kids.  The service project class kids once again did something.  They all gathered toys for each kid and made a gift bag for them.  There was also a little something in there for the whole family to help with going to the hospital.  We don't feel we deserve all this special stuff.  People are so kind and helpful.  It is so cool to see God move through his people and bring us blessings.  The kids loved it all.  It is funny because my kids are supposed to be in that class learning how to give and serve others but we have not been able to do it this semester.  We look forward to being a part of it one day!