the rest of Sunday was okay... she kept complaining about her tummy. We had a bunch of finger foods for dinner during the superbowl and she had some stuff on her plate, but I don't think she really ate much of anything. I gave her a bath and let her watch tv in my bed. Then I just let her sleep there because she was whinny again. I planned on moving her when I went to bed. However, she kept waking up crying again and I did not want her to wake up the baby so I just let her stay in our bed. She was so fussy and her tummy is bothering her so much. I figured it was from the constipation, so I went to the store and got an enema for her. I gave that to her and that helped a little bit but didn't seem to do what is was supposed to. I also gave her some Motrin thinking maybe that may help her pain. I am not sure if those things were bad for her or not, but she needed something; I mean she is in pain. After those, we laid down together and she fell asleep and stayed asleep all night from what I know.
Monday we had to skip out on co-op again due to her tummy problems. She did not eat breakfast, but at snack time she did have a pack of mini poptart snacks. Then at lunch I got her to eat a piece of bologna. All day she complained about her tummy. She also started itching in places and has some white dry looking patches on her skin in different places. She took a nap today and even woke up from that crying and screaming. She can't seem to sleep very long without waking up in pain. She also kind of freaks out and wants me right away and I need to calm her down. She had a little bit of a vanilla milkshake at snacktime. She did not eat for the rest of the day, but she is still drinking her carnation chocolate drinks with miralax in them. Not as much as she needs to, but she is drinking. I hope that dairy isn't a bad thing to have a lot of when on chemo. She is not complaining about her mouth as much which is good. But she is still afraid things will hurt her mouth, so she is hesitant about eating and drinking much else. She is already severely underweight, like 28 lbs and just turned 4. So, I hope she doesn't loose too much weight with this chemo treatment and her not eating. That won't be good.
I contacted the nurse by email and asked about her tummy pain and explained all that was going on. They said that chemo patients should not get enemas (good to know), and said substitute of the colace pill was fine to be giving her. She also stressed that we need to really make sure to get enough miralax in her. We are trying, believe me. This email interaction did not answer all my questions, but we will be there Wednesday and I will have a lot to talk about then.
That night she went to bed in her room and I went out for a much needed Girls Night Out with a friend. When I got home she was awake and worried about where I was. She had also woken the baby and she was crying. I got the baby back to sleep and took Taylor into my bed again and calmed her down. Then told her I would be back in a bit. A little later I came to bed. She kept moving around and whining and crying and wouldn't stop. Why did she do so well the night before and now doing so poorly. Ugh!!! I finally had to kick her out of our bed and she slept on the floor, protesting of course, but she finally fell asleep. She went the whole day without a bowel movement once again. But she is also not really eating, so not sure how bad that situation is? I guess we will find out.
This morning I had to get up and get our youngest boy off to school. Again, I felt like a zombie. My face felt numb, I was so tired. I got him to school and when I came home Taylor was up looking for me and came and hugged me. She is so afraid lately of me being gone for some reason. She normally isn't like this. It is dinner time now, and she has not eaten all day long!!! She is on her third cup of carnation drink though, so that is good. We decided to go out for lunch today as a family, to get out. I mean, Taylor is fine except for her tummy hurting so it shouldn't be a problem. Well, while we were there, soon after sitting down she started complaining. She didn't want to eat, her tummy hurt, she wanted to go home, etc. She wanted to sit in my lap the whole time. Yet I had to feed the baby and I had to eat, so I needed my arms a lot of the time. She got mad at me and went to sit by daddy. But she kept whining and crying and saying she wanted to go home. She then came back to sit with me and at the end of the meal I took her to sit on the motorcycle in the arcade. She had some fun playing on that for a few minutes as my hubs wrapped up the check. We got home and after watching a little tv, she put herself down for a nap. Not too long after, she woke up crying again, she was freaking out and my oldest daughter said Taylor needed me. She was crying so hard, scared that I wasn't home. I had to sit with her and hold her to calm her down. She woke the baby who was also napping. Then The baby needed attention. Taylor wouldn't let me tend to the baby, she just kept freaking out. I had my daughter help out again, but I finally had to just let her get over it because I needed to deal with the baby. Poor thing, you know how sick kids are... They want their mommy, lots of attention, and to be held all the time. They are so needy and as a mom it is hard not to help them all you can. I hope the whole next year is not like this. I am not sure how I will be able to juggle everything at every moment. It has been a chore to get this blog done, but I know it's important. It helps me keep track of what's happening and it can help others who are in this place and want to know what to expect.
Tomorrow is the 2nd day of chemo...
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